About the Event
Thursday May 14, 2026 10:00 am - 2:30 pm EST Join us on Thursday, May 14, 2026, for a virtual conference and explore the latest advancements in managing patients with rare diseases. Enhance your skills, and network with experts and advocates for a truly enriching experience. This virtual conference will include an overview of rare diseases, pathophysiology of Gaucher Disease, Fabry Disease, and Sanfilippo Syndrome, presentation of symptoms, complications and life-long issues, patient advocacy and resources, clinical trials, carrier and genetic screening, and individualized care. A recording will be made available to registrants within 2 weeks of the event. This virtual conference offers 4.5 CE credits for nurses and nurse practitioners and is open to the public.