Beyond the Norm: A live virtual conference

We can't wait to see you there!

About the Event

Thursday May 14, 2026 10:00 am - 3:15 pm EST Join us on Thursday, May 14, 2026, for a live virtual conference and explore the latest advancements in managing patients with rare diseases. Enhance your skills, and network with experts and advocates for a truly enriching experience.   This live virtual conference will include an overview of rare diseases, pathophysiology of Gaucher Disease, Fabry Disease, and Sanfilippo Syndrome, presentation of symptoms, complications and life-long issues, patient advocacy and resources, clinical trials, carrier and genetic screening, and individualized care. A recording will be made available to registrants within 2 weeks of the event. This live virtual conference offers 5 CE credits for nurses and nurse practitioners. This nursing continuing professional development activity was approved by the Northeast Multistate Division Education Unit, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.  This event is open to the public.